Dear Ben,
I don't say this often enough, and I can't make up for all the times I've never been there, but I love you. I really do. It sucks that it takes a scare like this to remind me that I have feelings, or a family, but I guess it does and that makes me a bad person. But I do love you, you mean more to me than you'd ever know. I know you don't remember much about when you were very young, but things were really bad back then. Mom wasn't living with us, she worked, Glenn worked, Glenny wasn't going to school and for that matter neither was I. I stayed home a lot to be with you, and to watch you because no one else could. Yes, grandma helped, but no one could be there often enough, so I did. It is so weird to think that you have always been to me more of a son than a brother. I remember when mom and dad first told us about you, I was 9, Leslie seven, Glenny was three, we were at auntie ava's house, and we ran screaming around the yard "Baby Brother Baby Brother Baby Brother!" because we were so excited. I remember picking out your name, Leslie, mom and I sprawled out late night on their water bed, striking names off notebook paper. You were almost a Peter. I've watched you grow up from so far away that it hurts, it really does, so I bury that hurt with anything I can think of to make it stop, make it small. When you were just a baby, mom and dad got in a car accident that hurt mom pretty badly. She couldn't do much, so I took on the brunt of your care. Glenny was little, and he and leslie always fought, but there was something about you that was special, something that reminded us that we were a family, the four of US. I remember packing you around on my hip, warming frozen bottles and holding you when you cried. Your favorite night time songs were buffalo girls and the song about riding a horse with no name. You hated christmas carols. Christmas was always hard, usually lean, but watching you tear open your christmas gifts, now that I look back on it, the joy, the excitement on your face...that was more than I ever could have asked for. As you got older, I sill worked hard every day to do what I could for the family, cooking, cleaning, dishes, laundry, I hated it. I hated that we couldn't be normal, that we couldn't be a real family with a mom that was there and a dad that all of ours instead of just yours. I hated everything about my life, but I never, ever hated you. Sharing a room was hard, especially with all four of us and all of our toys and clothes and books crammed into that little room; but I miss it now that it isn't ours anymore. I miss staying awake and hearing everyone breathe late at night, Glenny snoring, Leslie shifting and you talking in your sleep. When you first said my name, you called me Lala, just like the yellow teletubbies that you loved and I despised. But the nickname stuck, it's the only one I've ever had. I remember when you started walking, and we would let you out in the summer on the farm, running around in your diaper with no shirt or shoes, screaming with laughter with the warm, dry grass under your toes. When you started school, your first day, we walked hand in hand down the driveway, and it was all that I could do to convince you to sit by yourself up front while I walked halfway down the bus to sit with my friends. I wish I would have stayed with you. When the quail hit the side of the bus, all the kids laughed and squealed with joy, but you, ever sensitive, ever caring, ever loving Benjamin, you cried because you understood. You understood. I miss reading to you, I wish I would have done it more. I wish I would have tried harder, been better, been stronger. I never gave everything I had, I thought I did, but now I understand that I could have done so much more for you. I am so proud of the person you are, so proud of the person you are becoming, I just wish you could know how much I care, how much I will always care for you. I love Glenny, and I love Leslie, but you are special to me in a way that words cannot describe. Knowing that you are sick, so very far away kills me. I hope you're not scared, I hope you never carry the constant fear that I live with, the constant struggle to be normal and feel fine. I hope that dad gets you seven-up and crackers and lets you watch tv in the living room and cheetos the cat will lay with you and purr, just like he did when he was a kitten. I hope you're ok, and I hope you'll be ok, because out of everything I've ever done in life, everything I've created, everything I've changed, you are the most important, the best, and the most beautiful thing I have ever had a hand in. I love you; and your future is so bright and amazing. Anything I could ever do to help you, no matter what, anything I have to offer that you might need will always be yours, without question, without fail. I love you, brother, I love you Ben. Please be ok.
Your big sister, Karla
If tears could stop the pain, could drown the hurt, could fill the void, I would be just fine.